El próximo 14 de octubre, la FDA (Food and Drug Administration) acogerá un encuentro histórico con pacientes de Porfiria Eritropoyética Congénita (PEC). La Alicantina Fide Mirón ha sido invitada a compartir su testimonio como símbolo de lucha, resiliencia y esperanza.
Washington se convertirá el 14 de octubre en el escenario de un momento sin precedentes: por primera vez, pacientes con Porfiria Eritropoyética Congénita (PEC) tendrán la oportunidad de ser escuchados directamente por la FDA (Agencia Americana de medicamento).…
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